What are the key findings of the report?
Diagnosing Well
People are struggling to access a timely and high-quality diagnosis, as well as get a subtype diagnosis. A timely and accurate diagnosis can often set the tone for how people living with dementia experience the rest of their pathway, as well as the condition itself.
Supporting Well
Access to post-diagnostic care and support, as well as access to dementia advisers and care coordinators is variable across the country. The lack of access to these services can leave people feeling unsupported and unable to manage their dementia symptoms effectively.
The lack of integration between care plans between services and professionals as well the lack of ownership of advance care planning can leave people without the appropriate support to manage their condition.
Living Well
Access to coordinated, proactive and ongoing care and support is limited. There is variation in the provision of follow-up care and people reported inconsistent care plan reviews, which were not meaningful.
Many people receive most of their support from their primary informal carer, but carers are struggling to access support services for their own wellbeing. This is a result of inconsistent needs assessments, as well as the quality of formal care acting as a deterrent to them seeking help.
Many people living with dementia will be admitted to hospital and transition to a care home. However, people are struggling to access the appropriate care for their level of need within these settings.
Dying Well
Dementia is a terminal condition, yet people living with the condition struggle to access appropriate palliative and end of life support, which often exacerbates unnecessary hospital admissions.
